Special Needs and a Special Post

The very lovely Jeannie Prinsen from Little House on the Circle has written a guest post for Ellen Stumbo about the realities of love and faith in the face of special needs. Here is a little excerpt:

I try to see the face of Jesus in them, and to minister to them with joy and humility.

This plan usually lasts for about… ten minutes.

The problem is:

Jesus does not ask me to tape or glue broken jigsaw puzzle pieces 20 times in an hour, or need to be reminded 19 out of those 20 times to say “Please.”

Jesus is not in the habit of yelling with rage when I tell him that this is blue-box week, not grey-box week, or that we go to church on Sundays, not Saturdays.

Jesus never screams (with hand up to mouth for increased megaphone effect) when told that it’s time to get ready for supper, and does not need to be told ten times to go to the bathroom and wash his hands.

Jesus does not say, “Mom? Mom?  Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom?”

And Jesus does not wait to say, “Mom? Mom?  Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom? Mom?” until I have gone downstairs to the laundry room, and then say it louder.

To read more of this wonderful post, click here. Is it wrong that I found myself laughing? Laughing not from humour, I suppose, although there is always humour or you’d never survive, but more a laughing over a shared sense of the ridiculous, and a shared sense of experience which when it is happening can feel hugely frustrating and isolating.

My son actually apologised to me today, unbidden, after I told him the world does not revolve around him (this is a foreign concept to a child with autism, as they genuinely struggle to see things from anyone else’s point of view and are often so bound by anxiety that the fact that other people might be fed up, or whatever, never occurs to them). I was so touched by this apology I nearly cried. But that would have made him balk so I didn’t. Life is never easy for families with special needs offspring. Say a little prayer for a family you know with special needs concerns, will you?

Be blessed, friends. Have a good weekend!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s